Tomorrow we will have our first Instagram Takeover and we couldn't be happier with our first feature: Grace of @bowenandnella (Instagram) and Prayers for Nella (Facebook). This family is sure to steal your hearts. I first came across Nella in the random instagram feed and the twinkle in her eye caught my own. I spent the rest of the day reading her story and basically crying my eyes out, and to be completely honest, I probably cried all of the next day as well.
Nella has Spinal Muscular Atrophy, or SMA. In short, SMA is like ALS (Amyotrophic Lateral Sclerosis), but in infants. Nella has Type I, which is the worst of its kind. Infants with Type I SMA typically do not live past their first year of life. Yet here she is, beating the odds as she just celebrated her third trip around the sun.
I can't imagine living with the reality of your child having an absolute fatal diagnosis. Of having no options or treatment to save your child's life. What inspires me most about Grace is how she has approached her situation with, well, grace. Their motto, "Choose Joy" is one that I have adopted into my own life. When we have no choices, we can still Choose Joy. This is possibly best seen in the way Nella dons an adorable outfit every single day, not to mention lovely painted nails. She may be hanging around the house all day, but that doesn't mean she can't look fantastic doing it!
August is SMA Awareness Month, and we are so happy to help spread awareness about this terrible disease. Although it is the number one genetic killer of infants and young children, no one really knows about it. We are so grateful for Grace as she shares a little piece of Nella with the rest of us. Look out for Grace's takeover tomorrow on our Instagram page. She will be posting throughout the day and will be answering any questions you may have about living with SMA.
Here is a little sneak peek at Grace and her beautiful family... just a warning, you should have some tissues handy.
Written by, Kelly Estrella